Thursday, November 21, 2013

Day 23- ENGRAFTMENT!!!

After 23 days of torture and pain, Cami has officially engrafted... HOORAY!!!  She has had an ANC of 500 for 2 days straight and today the Doctors declared yesterday engraftment day (they say you have to be at 500 for 2 days straight, but the real engraftment day is the first day you reach 500.. kinda strange)!  I cannot even describe the joy I feel today!  This is the day we have been waiting for!  This is the day our sweet Cami has been working so hard for and suffering so much to get to!  Her little body finally accepted that amazing donor's marrow as her own.  Today is our fresh start.  Today her body got the gift of a new immune system and one that will fight that yucky cancer FOREVER!  Cami still doesn't feel 100% (she has what they call engraftment syndrome) her tummy hurts, she's nauseous, and she gets the chills when she gets out of bed.  BUT.. her mouth sores are GONE and we are seeing her larger-than-life personality trickling back, so we will take it!  Now we will begin weaning Cami off her morphine pump, trying to get her to eat something, and take her medicine orally (instead of through her IV).  This is quite a process and it doesn't happen over night, but we could really go home anytime she is ready (and meets a few requirements)!  The Doc's think 5-10 days!  YIPPEE!!!

Day 22 was the day Caden, Aunt Linds, and Amanda picked.. they are the winners of the engraftment day bet (but Cami gets to keep the money, it's hospital tradition).

We are thrilled that Cami has engrafted, it is a BIG milestone reached!  BUT.. the next few months will be critical for Cami.  The next milestone is day +100 and we pray we can make it without any hiccups, then we can breathe a little easier once again.  Now that Cami's body has accepted the new marrow, there is still a chance she will develop Graft verses Host decease.  This is where the new marrow attacks Cami's body because it see's it as a foreign object.  Oddly enough,we are praying for a little bit of GVHD because when the marrow attacks Cami's body, it will also be attacking any remaining leukemia, but too much GVHD can be very dangerous.  Also, Cami will have a very low immune system for the next year (especially over the next 100 days), so we will be staying away from crowds (yes, that means school) for the next year.  We figured out that her day +100 will be February 6, 2014!  There is still so much to worry about, but today we are celebrating and taking a giant sigh of RELIEF!

Happy engraftment day little love-



Cami's darling friend Mia (yes.. she shaved her head to support Cami when she relapsed!) came to visit and brought her American Girl doll for a tea party and to celebrate the special day.  
We love you Mia!  

Silly girls!

23 comments:

  1. So excited to read this today!!! We have been praying for sweet Cami and have been checking back constantly for an update. So great! Way to go Cami, stay strong!!!!

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  2. Wahoooooo!!! Prayers of gratitude and for continued healing for sweet Cami.

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  3. YIPEEEEEE!!!! Go Cami, Go Cami!!!! Lisa. SLC.

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  4. goooooooooo, cami!! congratulations from a friend-from-afar.

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  5. Mia.....you are one of a kind. I can't believe the maturation you have for your age. I only hope my kids and grandkids ARE and HAVE friends like you.

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  6. Cami....you are just beautiful in every way. I love you.

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  7. Fantasic news, I'm so pleased for all of you, especially Cami:)

    I pray that the next few days & weeks will go ok & that Cami's body will accept it all.

    You are a lovely family & your blog is brill:)

    May our Heavenly Father continue to watch over you all, especially lovely Cami.

    Take care.
    Love from
    Julie in the UK

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  8. What wonderful news!! I am so happy for you all!! :)

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  9. This is fabulous news! We have never met sweet Cami, but we pray for her (and her family) every day!

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  10. Outstanding!!! So happy to hear this WONDERFUL news! Carver family...stay strong and know that all of you remain in our thoughts and prayers.

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  11. Wonderful News! So happy for you little lady!! (and family too :)) Continued prayers and love sent your way! <3

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  12. I have tears of joy for your sweet family. Praise Jesus! I pray God continues to heal your precious angel! With love and hugs, Carissa (a 649 MUNS Wife)

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  13. Happy Day! Here is to the start of a new cancer free life! So very happy to hear this news!

    Vickie J.

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  14. So happy to read this today! What an amazing friend your Cami has. Continued prayers coming your way.

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  15. Kept watching for an update. So HAPPY & inspired by such an amazing child, an old-soul, with maturity & srength! And what a great family she has to handle all this, 2nd time around! God bless you & your family!
    From someone who lived in your area & prays & cares deeply for your family..the faith, the strong bond & the decision to KEEP ON FIGHING...& WIN!
    Go Cami Strong!

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  16. Cami you are so strong willed, you keep fighting girl;) I LOVE to see you smiling, especially with your BFF Mia! We continue to send our LOVE your way! You've got this!! You and your family are an inspiration to ALL. Can't wait for the next post to say you are on your way home;) xoxoxo

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  17. My b day is february 5 XD

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  18. God bless you Cami. I am glad things are looking good for her. :)

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  19. Our prayers for you Cami have been answered!!! :) .... God is good! We are so very happy for you ... You are such an amazingly strong and brave little girl and we love you!!! <3

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  20. Cami your amazing and marvelous in every way you brave, smart, you also have the heart of a lion! ~Abby Ps add me on animal jam I'm everroses

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  21. Strong, brave and beautiful little girl!

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  22. Go Cami! Awesome! I'll continue to keep you in my prayers.
    Rebecca in Finland

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  23. There is really nothing in this world like a REAL friend!!! Love the pictures! Those girls are darling friends!! So happy to hear good news!! We will keep praying!!! Love your family!!

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