Today Cami woke up with the biggest grin on her face. She was so happy for the first hour and then she started getting really sick. Her tummy is hurting, she is nauseated and her body aches. Unfortunately his is all pretty normal for transplant kids and they expect it to get worse before it gets better. They are pumping her full of so many meds it is hard to keep track. She will need to be given lots of support care for the next few weeks. She will be given nutritional support, transfusions, antibiotics, pain meds, fluids, electrolytes and meds to help with nausea (and that is just the list of supportive care).. there is a lot more that goes into her little body each day! Today Cami kept saying she just felt "icky", so we snuggled up in her bed all day watching movies in between her throw-up sessions.
It breaks my heart.. just just looks so sick! I'd do anything to take it away.
Feeling a little better after some zofran!
Just look at all those boxes on her pole!
She has to carry her tubes around her shoulders because they are so heavy.
Lego's are her favorites right now.. these little sets are keeping her quite busy.
day +1... DONE!!!
She is still so beautiful despite what she's going through physically! Although I don't know you or your family, I'm praying for you and thinking of you often.
ReplyDeleteCami is seriouly awe-inspriring. She is one of the strongest and bravest people I have ever heard of! My heart and prayers are with you and your family! I have never met your sweet, precious family but I am so endeared to you all! Happy day one of the rest of your lives:)
ReplyDeleteSweetie, I love you! I'd like you were absolutely healthy. I'm sorry for my bad English. I have not got enough words to express all my feelings. But I will pray for you every day. God save you, my dearest girl. Tatiana from Russia
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