Monday, November 4, 2013

Day 6

Are we really only 6 days past transplant?  It feels like a lifetime ago!  Things have progressively gotten harder for our sweet Cami the last few days and even though her symptoms are all expected, nothing could have prepared us for how difficult it has been on her.  She officially has full-blown mucositis (a painful inflammation and ulceration of the mucous membranes lining the digestive tract) imagine canker sores lining your mouth, throat, and entire digestive tract.  It is VERY painful.  So painful that it makes it difficult for Cami to even swallow her own saliva (she stopped eating well over a week ago, they are feeding her through her IV now and she uses suction so she doesn't have to swallow).  Mucositis also causes nausea and diarrhea.  It is not pleasant.  She also feels like she has been hit by a truck and her little body just aches all day long.  Thankfully, they have put her on a morphine pump and that has helped take the edge off.  It makes me sad though, the pain meds make her loopy, grumpy and emotional.  One moment she wants me holding her, the next she wants me to get away from her.  I am trying to be supportive, but it can be very frustrating when there is really nothing more we can do to help.  I have been missing my bubbily, sweet, energetic Cami girl lately and then I feel guilty because I know it is not her fault.  I know that my Cami girl will be back, but they don't expect things to get better until she engrafts ( 8-20 days) and that feels like FOREVER away.. I'm not sure I can last that long watching her in pain!  We are just praying she engrafts sooner rather than later so she can get some relief.  In the meantime, we are just taking it minute-by-minute.  Please keep Cami in your thoughts and prayers that she may be as comfortable as possible until she engrafts.

Cami with her pain pump and her new bald American Girl doll 
(LOVE that they do that by the way.. awesome company!)

Usually Pat and I take turns sleeping at the hospital with Cami, but lately she has just wanted her mommy and of course we understand.  Sometimes you just need your mommy, but yesterday I was able to go home to be with Caden for awhile.  He was so cute, he tackled me when I walked in the door and kissed every inch of my face.  We have been missing each other like crazy!  We just had a normal night of dinner and bedtime routines, but to me it was wonderful!  I can't wait until we are all home together and we get to have "normal" back again.  I love my bubba boy.. I am so proud of him for being so tough through all of this.  This has not been easy on him one bit!  

Sorry for the low quality pic, but oh, how I love this kid.. 
He makes me smile through the worst of days.

Thank you all for your continued love and support through this.  We know your prayers and positive thoughts are working!  We can feel your love and we have never needed it more.  Thank you, thank you.  We love you all!  

15 comments:

  1. I have been thinking of you & your family a lot in the past few days & praying for you all, especially Cami, & will continue to remember you all in my prayers.

    This must be so hard for Cami, especially the nausea & the ulcers. I'm so glad that they have medication that can help.

    Praying for all your family - & especially that Cami will be as comfortable as possible at this time.X

    ReplyDelete
  2. Thank goodness for loopy. Gosh this sounds so utterly awful. I complain if I get a headache. Shame on me. I realize it is hell for Cami but it must be so hard as her parents to not be able to do more. Poor thing. Glad she gets at least some relief from her pain. It will also help her 'forget' the worst days. Wishing ALL of you Godspeed through the next 8-20, seems like forever now but when it's over it will be such a relief. Love and peace for your sweet Cami and your whole family.

    ReplyDelete
  3. Hang in there Carver family. I pray that the light at the end of the tunnel shows itself sooner rather than later. Praying for you all. Lisa.

    ReplyDelete
  4. Hang in there guys! My dad AND sister in law had bone marrow transplants more than 13 years ago. It is so hard, especially the spot where you are at right now, but it does get better. Love, hugs and prayers for all of you, especially Cami <3 - Skelton Family

    ReplyDelete
  5. Not sure you even know who I am. just another fellow bountiful-ite:) Anyway I want you to know I'm praying for you and your sweet Cami. What an incredible mother you are!

    ReplyDelete
  6. If there was anything anything ANYTHING i could do for you/her, i would in a second. I think of you always and keep a prayer in my heart. We love you, Carvers and CAN NOT WAIT for this month to be over for you... ((((hugs)))

    Amy & David Ohlson
    Coop, Ky, & Cam

    ReplyDelete
  7. your daughter is beautiful! I'm so sorry your family has to go through this!

    ReplyDelete
  8. Special prayers will continue for Cami every single day! With all my heart I hope that things will get better for her very, very soon & that she will be comforted & pain free. Special prayers for you Chelsea & the rest of your cute family, your strength continues to amaze me more & more each day! Love you BIG!

    ReplyDelete
  9. Prayers going out to your family as I know this is hard on everyone! This is the ROUGH patch but it will pass and your energetic smiley happy girl will come back. It does take a while though. The time in the hospital after transplant is unbearable. After you go home it will be so nice but hard in a different way. Take it from someone that has been where you are, it does get easier and life does get back to "normal" little by little. One day at a time is all you can do .

    Vickie J.

    ReplyDelete
  10. Thoughts and prayers flowing to the entire Carver family. Please let Cami know we are proud of her and how strong she has been as she fights this monster. PLEASE let us know if any of you need anything. We are just a short dash away and standing by....

    CMSgt Gary Marsh
    649 MUNS
    Hill AFB, UT

    ReplyDelete
  11. Sending love and prayers - I've been fasting for her too :)

    Liz Schultz

    ReplyDelete
  12. Cami,

    Hope you are starting to feel better. You and your family continue to be in my thoughts and prayers. So, stay strong soldier and keep on kickin' cancer's butt!!!

    CMSgt Gary Marsh
    649 MUNS
    Hill AFB, UT

    ReplyDelete
  13. Hey :)

    I want to send a letter to Cami, how can i send 1?

    ReplyDelete
  14. http://www.coachoutletstoreinc.com/ Coach Outlet Store Online
    http://www.michaelkorsoutletmkinc.com/ Michael Kors Outlet
    http://www.coachfactoryoutletwebsite.com/ Coach Factory Outlet
    http://www.tomsusashoes.com/ Toms Shoes
    http://www.cheapjerseysinc.com/ Cheap Jerseys
    http://www.michaelkors-bedford.com/ Michael Kors
    http://www.coachoutlet-sale.com/ Coach Outlet
    http://www.coachfactoryoutletorg.com/ Coach Factory Outlet
    http://www.coachoutlet-buy.com/ Coach Outlet
    http://www.coachhandbagsonlineoutlet.com/ Coach Handbags
    http://www.giuseppezanottionline.com/ Giuseppe Zanotti
    http://www.coachfactoryoutlet-handbags.com/
    http://www.coach-factory-outlet-online.com/ Coach Factory Outlet Online
    http://www.coachstoreonline.com/ Coach Outet Store Online
    http://www.coachfactoryoutlets2014.com/ Coach Factory Outlet
    http://www.michaelkorsoutletonlinemk.com/ Michael Kors Outlet Online
    http://www.celineoutlet-online.com/ Celine Outlet
    http://www.michaelkors.name/ Michael Kors
    http://www.michael-kors-outlet-store.com/ Michael Kors Store
    http://www.tomsshoescompany.com/ Tomss Hoes
    http://www.pradaoutlet-store.com/ Prada Outlet
    http://www.fitflopfootwear.com/ Fitflop Footwear
    http://www.celinebags-outlet.com/ Celine Bags
    http://www.fitflopsflipflops.com/ Fitflops Flipflops
    http://www.fitflopusaonline.com/ Fitflops
    http://www.giuseppezanottidesigner.com/ Giuseppe Zanotti Designer
    http://www.fitflopflip-flop.com/ Fitflops
    http://www.giuseppezanottisneakersmen.com/ Giuseppe Zanotti Sneakersmen
    http://www.fitflopsandalssale.com/ Fitflops

    ReplyDelete
  15. The remaining three chapters -- "Asian Beat", "The Grey Town louis vuitton outlet", and "The Scar" -- are all parts of a larger story, each of which is told by a different key character in that story. These chapters focus on Mushi and Jam Shiyoa along with replica louis vuitton their common friend Yuki Yoshii, who has become somewhat of a surrogate father for Jam ever since her real father has slipped into absenteeism and alcoholism. What happened to Mushi and Jam's mother louis vuitton replica is never really discussed -- or at least if it is, I completely missed it -- but it's implied that, whatever her fate, she's not coming back.

    ReplyDelete

Note: Only a member of this blog may post a comment.