Saturday, November 16, 2013

Day 18- little signs of improvement!

Yesterday was like Christmas morning... better than Christmas morning!  The nurse brought Cami's labs and I was floored!  She's got 0.1 neutrophils (this is the part of the white blood cell that fights infection and the part that her new marrow has to begin making on its own).  Her neutrophils along with all her white blood cells have been non-existent up until now (which is why we have to keep Cami so protected from germs).  This means that there is activity in her new marrow and Cami's body will soon have the ability to heal the horrendous sores and all the other pain she has been experiencing.  Her neutrophils need to be at 0.5 for two days straight to be considered engrafted, but this is an amazing start!  This is what we have been waiting for!  

Today Cami's neutrophil jumped up again to 0.2 and she is feeling so much better!  Her mouth sores have drastically improved and she is smiling, talking and playing.  Our little room is filled with her special spirit and light once again.  She is feeling a like she has the flu (which is normal when your marrow is regenerating), but it's nothing she can't handle after all she has been through.

Caden's cold has been clear for about a week now and I felt safe to bring him up to see her today.  They were both so happy and Pat and I were in heaven watching them play and chat together.  Caden was bragging all about how brave he was getting his flu shot and Cami could have easily dissmissed him, but she acted like it was the coolest thing ever and told him she was proud of him.  They love each other so much.  It is the first time our family has been together in 21 days and my heart was filled with joy.  We have so much to be grateful for today and we can't wait to see what those labs have to say in the morning!  Go Cami... GO!!!

15 comments:

  1. Amazing!!! Go Cami Go!!!

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  2. YESSSSS!!! This is such great news. So happy for you all....

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  3. This is WONDERFUL news! Keep going Cami! Lisa. SLC.

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  4. AWESOME Cami, keep it going!!

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  5. YAY! How sweet and exciting. So happy for Princess Cami you go girl. :)

    God bless you all

    Erika

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  6. So excited for her to be on the way up and out of the hospital! Yay!!!

    Vickie J.

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  7. Oh cami I'm keeping my fingers crossed for you and your family! Even in animal jam I want froggy!!!! If you like you may buddy me I'm everroses~Abby A. P.S I'm publishing some books and one will be about you

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  8. YAY!!!! that is such great news. never met you guys but am praying for you all! especially love the sweet relationship between cami and her brother. rare for kids so young to have such a deep appreciation for each other!
    -Katie
    Orange County, CA

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  9. That is wonderful news! What a gorgeous family you are:)

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  10. I am so happy that those numbers are increasing and she is feeling a little better and that you all got to be together. I'll keep praying that you have even more to be thankful for as Thanksgiving approaches. God bless you all!

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  11. Such wonderful news!! So happy to hear that she is starting to feel at least a little bit better and so glad your family can be together even for a little bit!

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