Sunday, August 11, 2013

Here we go.. AGAIN!

There is so much to write about, I hope I can find the words.  Our world has been turned upside down... AGAIN!  The last 5 days have been the longest and hardest days of our lives, but we know things are about to get a lot worse before they get better.  For those of you who don't know, our sweet Cami has relapsed.  Gosh, it's hard to write that awful word.  Things off-treatment were going smoothly, she made it through all of her 1st grade year event free and was doing so well, but just when we started to get comfortable in normal life again... BAM we were hit with a ton of bricks!

For about 2 weeks Cami had been complaining of pains mainly in her hips.  They were waking her up at night and keeping her from wanting to play.  Wednesday, July 31st, the pain in her hips became unbearable and she had a low-grade fever to top it off, so Thursday morning at 3am we took her to the E.R.  After a long wait, an x-ray and lots of blood work the ER docs let us know that her X-ray looked great but her labs came back a little concerning.

waiting in the ER

They sent us up to see the oncologists as soon as clinic was open.  When we got up there, the Doctors assured us that her blood looked like she had an infection or a virus and that we shouldn't worry about relapse.  We relaxed a little, but we still needed to get down to the bottom of her extreme hip pain, so they sent the infectious disease Doc's in to check her out.  They ordered a TON of blood to be drawn and tested for every virus and illness under the sun.  They also ordered an MRI of her hip to check for a bone infection.  We had a long, full day at the hospital and didn't leave until around 7PM that night.

She was a champ in the MRI and held perfectly still!

The next day Dr. Verma (Cami's main oncologist) called me to give me results.  She said the infection/virus labs were negative and that her MRI showed signs of bone damage (AVN from her steroids), and that her bone marrow was regenerating and that was concerning.  She wanted do a bone marrow aspirate so we could know for sure what was going on, but they couldn't fit us in until WEDNESDAY!  The next 5 days were probably the longest 5 days of our lives!  We googled EVERY explanation and prayed that there would be a simple answer.  When Wednesday finally came around, Cami was starting to feel a little better and her fever had gone down, so we were hopeful.

Waiting to go back to the "sleepy Doctors"

Bone Marrow Aspirate time

After Cami's bone marrow aspirate, Dr. Verma came in to deliver the results.  That Cami's cancer is back and she will need a bone marrow transplant.  My world instantly started spinning and I felt sick, I don't remember anything else she said after that.  Last time they told us her diagnosis we had the luxury of ignorance.  This time we know.  We know way too much and it is terrifying.  

They let us go home for the night to be together as a family before we checked in for the long stay.  Cami requested Boondocks, so we gathered the troops and took Cami out for a night of fun.  I am so grateful we had that night to be together and try to wrap our brains around it all.

Boondocks with her awesome cousins

It all started early Thursday morning, Cami went in for surgery to have her central line (broviac) placed then we were admitted to the cancer unit.  That day was overwhelming and exhausting.  Cami went through surgery, a back poke with chemo, an EKG, an EEG, another MRI, she started the dreaded steroids and 3 different chemotherapy's.. all in the first day!  We were blown away by Cami's attitude through the entire thing!  She was so brave and strong and just all around amazing, oh I love her so!

Cami preformed surgery on her dog 'Spot' to place a broviac just like the one she got.  
I took a picture so you can see what is now in her chest.

Cami has a long road ahead of her.  She will be hospitalized for about 5 weeks for this first round of chemo, and possibly another round after that.  Then she will need radiation and a bone marrow transplant which means ALOT of time in the hospital.  It makes the treatments she had the first time around seem like a cake walk!  This is going to be a long, hard battle, but we know that our Cami can do this!  I wish with everything in me that we didn't have to fight for Cami's life once again.  I hate cancer and what it has taken from our family, but we are trying to see the good in this.  We are trying to remember that Cami has touched so many people and will continue to inspire and uplift.  Even though the chemo is already starting to take over and is starting to make her feel really sick, she still has that bright, beautiful smile.

All smiles while she is getting her chemo-

The chemo is starting to take it's toll and little Cam gets quite sleepy-

Until her counts bottom out, 
we are allowed to take walks late at night while the hospital is empty.
We got lucky the other night and the helicopter took off as we were out watching the sunset.  
It made Cami so happy!

We are still completely overwhelmed and in shock by all of this.  We are still trying to soak it all in.  The one thing getting us through it all is the amazing amount of love we have coming our way.  We have felt your prayers and they are carrying us through.  Thank you to everyone who has brought meals, gifts, left words of encouragement and prayed their hearts out for us!  We would be lost without you.  Love you all!  

32 comments:

  1. I havent been following your blog very long but just read this update tonight. So sorry to hear this news! Will be praying for Cami and your family!

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  2. Your family is an inspiration and your beautiful Cami is clearly a fighter! Prayers for strength for everyone. Philippians 4:13.

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  3. Oh Chels!!! So not fair for any of you! I have been so sad and emotional but nothing of what you are experiencing! We love you all!

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  4. Praying for Cami!!!!!! I have been reading your blog since the beginning. And I am so sorry you are back. But my prayers will be back too. as long as you need them.

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  5. Hi! I play Animal Jam. I am sorry tp hear that Cami has struggled with cancer almost her whole life! I hope at some time in her life she is free of cancer forever! I am praying for her! P.S you should bring back Cami's frog again!

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  6. I play Animal Jam too...

    I'll be praying for you!!! :'(

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  7. Im so sorry bout lil Cami. This is my first time reading this blog an it tore my heart apart. May God be with lil Cami as she fights to beat Cancer Lord remove the cancer in her body an heal her an let her feel free. Amen

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  8. Pat and Chelsea, I am so so sorry that you guys are having to go through this again. That little Cami seems like the sweetest thing and doesn't deserve this. We will not leave your family out of our prayers.

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  9. Dear Pat and Chelsea, I am so sorry to hear that your sweet Cami has to go through so much. It breaks my heart. Please know that we are all pulling for her and you!

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  10. I can't stop thinking of you. I can't imagine this after going through so much. Sending you love.

    -jaimee

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  11. Sending Love, Hope and Support your way.

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  12. We don't know you but have followed your story from the beginning. We are heart broken and MAD at cancer right now. But we see how amazing and strong your family and CAMI is. We are praying for you!

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  13. So so sorry to hear this news. Thoughts, prayers, and love to you and your family.

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  14. Thanks for sharing your story, I just happened to see this on facebook and stopped to read it. I was touched by your courage. Praying for a speedy recovery and a time in the near future that is cancer free.

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  15. This just breaks our hearts! Please let Cami know that we love her and that she and your family are in our prayers!

    Brooklyn & Dawn Sadler

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  16. I am so sorry to hear that you all are going through this again. Cancer sucks! I pray for all of you. Sending hugs and prayers your way. Lisa M., SLC, UT.

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  17. Aww! I hope things go better soon. :(

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  18. You have the strongest family & that little Cami is simply amazing!!! Thoughts & prayers for you all through this difficult time! Hang in there!!

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  19. I am so sorry about all this. Doing anything I can to help you guys raise money--let me know! XOXOXO Hang in there, you are all super strong.

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  20. Your story is so similar to ours,my now 8 year old daughter had her first BMT in 2010 made it through kindergarten and relapsed in October of last year resulting in a second transplant in December. I feel your heart ache and fear, if you need ANYTHING me and my family are here for you guys. Our girls are so strong and amazing they can make it through anything <3

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  21. You don't know me, but I found your blog shortly after my nephew, Reiss Timothy, was diagnosed with ALL. Your blog, and especially Cami's end of treatment video, brought so much hope and clarity to our family during that hard time. Just 4 weeks after Reiss's diagnosis, my neice, Presley Claverie, was diagnosed with the exact same thing. It was, and still is, unbelievable. I have a sweet little niece and nephew fighting this fight of ALL. I have visited your blog multiple times to compare treatment and phases with Reiss's and Presley's. My heart is absolutely broken for this devastating news you and your darling family has received. It hits so very close to home. Thinking of Reiss and Presley and their journey's so far, I can almost imagine how devastated you must feel. Please know Cami is in our thoughts and prayers. Much Love, Erin Bringhurst

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  22. Hi, my daughter Brielle was in Cami's first grade class for a few months (before we switched schools). She loved Cami and missed her so much when we left. I have been following your blog from the beginning but never said anything at school since I figured all you wanted was normalcy. My heart just broke reading this last post! I am so so so sorry!! Cami is such an amazing girl and my little Brielle never had anything but sweet things to say about her. We will be cheering her on and praying for your family. XOXO : )

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  23. Hi, my son Andrew was in Cami's K and 1st grade classes. We both just love her and think she is so sweet. We will keep her and your family in our prayers.

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  24. Chelsea, I love you guys. And we sure love little Cami! I wanted so bad to come see you all this last weekend while we were there, but we just couldn't make it work. You are in our thoughts constantly. And our constant prayers! I'm so sorry you all are having to do this again. It is unbelievable. I admire your courage and optimism. I can only imagine what you all must be feeling and thinking and trying to deal with. There are so many things I don't understand, but I do know that Heavenly Father has a plan for our lives and that He will give us beauty for the ashes in our lives and turn every affliction for our gain. I was reading in 2 Nephi 2 the other night and verse 2 brought me a lot of comfort. Love you guys.

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  25. My son and I have been working on a little package to send your sweet Cami's way. Thank you for being such an inspiration and a reminder to hold your babes right every day. We are praying for your family and for Cami. She is such a beautiful girl and seems very fiesty and able to kick this once again!

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  26. I also play animal jam too, I don't have the cami's frog beta item but I want it. I'm so sorry to hear this, I hope you feel better, also tell cami I sent her a special gift on animal jam. ~bailey1120

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  27. I'm so sorry to hear this. Your poor family has been through enough but I am truly inspired by your beautiful, resilient girl. I'll be praying for your inspiring family. Xoxo

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  28. I found your blog about your family's journey through Meals and Moves and just spent around 2 hours reading every single post you've made in the past few years. Your story truly moved me to both tears and smiles. I am keeping you all in my heart, thoughts and prayers. Please know that you have a newfound supporter from Toronto (Ontario, Canada). Much love to you all xox

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  29. I found this blog about a month ago through Animal Jam and was instantly drawn to the tale of courageous little Cami. She is so brave, going through scary chemo, much braver than I could have ever been. Words can not convey how sad I was for her, reading about her chemo, and how thrilled I was when I found out that she had recovered.
    I decided a few days ago to visit your family's blog again, as I couldn't get Cami's story out of my head. I looked at the newest post; August 11.
    As I read the post, I felt as if I had been hit by a wave of icy dread because of poor Cami's relapse. I told my family, showing them a couple of my favorite posts on your blog, then showing them the most recent one.
    They all instantly responded, and agreed that, if it would be okay, maybe we could send a care package?
    Would that be okay? What sort of gifts does Cami enjoy?
    -Claire, age 11

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  30. Keep smiling! You are a Miracle in Progress just like Gwen!

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  31. It has been a long time since I have looked at your blog and use to follow you when Cami was sick last time. I was so happy that you were able to have a few years of good health!!! I feel shocked, but through her story, I KNOW Cami has his in her, she can beat it and will come out on top! She is a brave and strong inspiration to me. You all are in our hearts, minds, and prayers. Ps. I met you a few years ago at the Cheesecake Factory. My daughter stayed for a long time at PCMC and went to dinner there to "take a break" and recognized you. Just a little FYI. Sending much love to your family and sweet Cami, especially. These little ones are stronger beyond our understanding!

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  32. I am sorry to hear about poor little Cami. Prayers to you guys! Sorry for the late post. I forgot to post it last year and tell Cami I will send her something on animal jam sweet prayers. ~jammer60066

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