Looking back on my last post I feel a little guilty complaining about being stuck in the house. I mean there are people who don't even have a home to be stuck in. There are kids out there a LOT sicker than Cami who might never get better. I almost deleted it because I don't want this blog to be a place to complain or feel sorry for myself, but I also want to keep this blog real. Obviously, with childhood cancer comes some really bad days physically and emotionally. It felt good to write about it, but what feels even better is looking back on those days and thinking 'I did it, I made it through and it was hard, but things are looking up'.
Cami's nurse came to check her levels and they were a little higher! Hooray! We even snuck out of the house and went to a movie with Hopekids today (the movie theatre opens early so there aren't any crowds). Cami wore a mask in, I disinfected her seat, and she was grinning ear to ear the entire time (I think I was too). The minute the movie was over she asked when we could go to it again. It was such a simple family activity, but it seemed much bigger somehow. It is amazing how much sweeter these little outings become after we cant do them for awhile. Its just another reminder not to take the little things for granted. 2 weeks into maintenance and I was already taking everyday life for granted again. It's funny how life will just keep teaching you those little lessons until you get the point.
I thought I would post this picture I took of Cami's port when it's accessed. She has had this done hundreds of times and will do it thousands more before she's off treatment, and she is SO SO brave every time.
Caden gets really concerned about Cami and her "owie" when she is getting accessed. This time he unzipped his PJ's like he wanted to take it for her. Nurse Nancy gave him a bandaid just like Cami.
Today is a new day, the sun is shining and we have so SO much to be grateful for.
There are many things we are looking forward to:
Higher counts, Valentines day, spring is right around the corner, and our Disney World trip is coming up in 2 weeks.