Saturday, February 12, 2011

Looking back and looking forward...

Looking back on my last post I feel a little guilty complaining about being stuck in the house.  I mean there are people who don't even have a home to be stuck in.  There are kids out there a LOT sicker than Cami who might never get better.  I almost deleted it because I don't want this blog to be a place to complain or feel sorry for myself, but I also want to keep this blog real.  Obviously, with childhood cancer comes some really bad days physically and emotionally.  It felt good to write about it, but what feels even better is looking back on those days and thinking 'I did it, I made it through and it was hard, but things are looking up'.  

Cami's nurse came to check her levels and they were a little higher!  Hooray!  We even snuck out of the house and went to a movie with Hopekids today (the movie theatre opens early so there aren't any crowds).  Cami wore a mask in, I disinfected her seat, and she was grinning ear to ear the entire time (I think I was too).  The minute the movie was over she asked when we could go to it again.  It was such a simple family activity, but it seemed much bigger somehow.  It is amazing how much sweeter these little outings become after we cant do them for awhile.  Its just another reminder not to take the little things for granted.  2 weeks into maintenance and I was already taking everyday life for granted again.  It's funny how life will just keep teaching you those little lessons until you get the point.   




I thought I would post this picture I took of Cami's port when it's accessed.  She has had this done hundreds of times and will do it thousands more before she's off treatment, and she is SO SO brave every time.    




Caden gets really concerned about Cami and her "owie" when she is getting accessed.  This time he unzipped his PJ's like he wanted to take it for her.  Nurse Nancy gave him a bandaid just like Cami.


Today is a new day, the sun is shining and we have so SO much to be grateful for. 

There are many things we are looking forward to:
Higher counts, Valentines day, spring is right around the corner, and our Disney World trip is coming up  in 2 weeks. 



Cami's counts:
WBC: 2.4
Hmct: 29.7
 Platelets: 437
ANC: 800

9 comments:

  1. I am so glad you are feeling better! Today is beautiful and I love the sunshine, it's easy to by happy. Cami is so sweet and I just want to give her a squeeze.

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  2. Have a fabulous time at Disney World. So glad things are looking up!

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  3. 2 weeks!! eek!! :) so exciting!

    the sun really does help make everything a little better in the middle of a long, sick winter.

    and that picture of caden laying by cami is SO sweet. what a sweet brother! puts a big smile on my face. :)

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  4. So glad things are looking up! It is rough when you feel "trapped"...even when you know others have it worse. Its good for the soul to vent and let out some steam...
    I am so excited for your trip to DisneyWorld! How exciting...it will be a nice sunny break for your whole family.

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  5. So good to see you guys tonight! I wish we could have come in and chatted for a bit (winter and sickness are too good of friends). You guys are amazing. I just caught up on your blog and got so emotional watching your darling Cami on the video with her song. I can't believe what that little pure soul has gone through in such a short time (and you guys too!). Thank you for sharing your blog with us. Your faith and optimism through this hard time gives me hope in my life. Cami is such a fighter. She is beautiful. It was fun to say hi tonight. Prayers always for you guys--Shae

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  6. I am so excited for your M.A.W. trip. I hope you have the best time! That was so sweet for little brother to want to take it for her. These kiddos are so special to go through what they go through. And these siblings are extra special to have to watch and be patient while our attention is elsewhere. I have to say in your last post, those pictures of Cami are priceless. It shows what a strong warrior she is through her eyes.

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  7. Your kids are gorgeous, Chelsea. So glad you got to enjoy some special time at the movies with your girl. What a great mother you are to those kiddos. They are lucky to have you.

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  8. My best friend's parents just met Cami yesterday on the airplane. They have shared with us the special time they had and how meeting her has touched their life, and now touches ours. You are now in my prayers little Cami.

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