Clinic went well. Pretty much the same as always except Cami started the 2nd half of Delayed intensification (in other words the crazy chemo). She got 3 new new chemo's:
Cyclophamide (Cytoxin): This one they give her through her port. It infuses over 60 minutes. Side effects are; nausea/vomiting, hair loss (haha..too late), low blood counts 1 to 2 weeks after treatment, blood in the urine, metal taste in mouth, hormonal changes (nice), heart damage with high doses (which Cami did not get).
Cytarabine (or ARA-C): This is the one we will give her at home 4 days in a row for 2 weeks. It is a 3-5 minute push. Side effects are; nausea/vomiting/loss of appetite, diarrhea, low blood counts 1 to 3 weeks after treatment, mouth sores, hair loss, abnormal liver function, irritation to the eyes, flu- like symptoms.
Thioguanine (oral chemo): Cami will take this pill every day for for 2 weeks. Because it is chemo, we are supposed to wear gloves or wash twice after handling. It is a strange feeling to put gloves on just to touch something you are letting your child swallow. The side effects are; nausea, low blood counts, mouth sores, and abnormal liver function.
On the way up to clinic, we saw our cute cancer friend Millie and her mom Amanda. Cami was really brave because she knew that Millie had just done the same thing.
We LOVE when Daddy gets to come!
Here's the new chemo's
Here's the oral chemo she takes every day at home.
They have PCMC all decked out for Christmas.
Cami LOVES this Horton tree.
Cami had to stay accessed which means she had to keep the needle and tubing in her port for 4 days so we could give her the ARA-C at home. She HATED it, but we let her access her reindeer friend and she gave him his chemo too.
she even said ok, time for your Vincristine (another type of chemo Cami gets).
It was funny and sad that she knew the correct name.
I think the entire family could go into the medical field after this.
I got a not so fun delivery of everything we'd be needing to give her chemo at home...
Here's what is in a Chemotherapy spill kit, in case you were wondering.
We had to put this in our fridge...
chemo in the fridge, makes ya feel all warm and cozy doesn't it?
To give chemo at home, it is quite the process. I clean her tubing with alcohol, flush with saline (this pushes all the medicine through her tubes and into her body), pull back for blood, a zofran push (anti nausea push) over 3-5 minutes, flush with saline, ARA-C push over 3-5 minutes, saline flush, and then we finish with heparin (a blood thinner to prevent clots).
No wonder I've lost my mind!!!
I have to wear a gown, and special (extra thick) gloves to protect myself from the poison I am injecting into my baby.
This next picture makes me sad, I had to de-access her port (or pull the needle out).
This hurts Cami every time and I HATE it!!!
What a brave girl this Cami of ours is!
Weight: 17kg (37.4 lbs.)