I will begin with the positive. Today we started the last phase before maintenance, Delayed Intensification. Today was a little like the beginning of the end. This phase totals 57 days (if everything goes as planned). We are looking to be in maintenance towards the end of January. After January Cami's hair should start to grow back and we will only have to go to clinic for chemo once a month...this is HUGE and we are getting so close I can taste it! This is all great and exciting, the only drawback is we have to make it through this BRUTAL round before we get there. Cami will be on 9 different drugs in this round; Dexamethasone (steroids again...blahhh), Vincristine, Doxorubicin, PEG-asparaginase, Thioguanine, Cytarabine, Intrathecal Methorexate, and Septra.
Like I said it is BRUTAL.
Like I said it is BRUTAL.
Today Cami got: Methotrexate, Vincristine, and Doxorubicin (or the red devil as they call it up at clinic). Cami has been getting Methotrexate and Vincristine this entire time, but the "red devil" is new. It is literally red. Some of the side effects are; Nausea/vomiting, hair loss, pink or red urine, low blood counts, mouth sores, heart damage, nail bed discoloration, sensitive skin that burns easily. The Doctors said to expect transfusions and low ANC's (meaning low immunity) during this phase. Lovely.
Doxorubicin (Red Devil)
While we waited for her chemo infusions they gave Cami a doll and real medical supplies to play with. She cleaned and accessed the port, taped it up, took a blood sample, and hooked her up to chemo. It is amazing how closely she watches what is happening to her. I swear she could access her own port if needed.. she was a pro!
We also had to see the "sleepy Doctors" for yet another lumbar puncture. I was very anxious about this one because our last lumbar puncture didnt go very well and Cami was in EXTREME pain for about 7 days after. I was terrified this might happen again, but Cami was giggling uncontrollably before they put her to sleep, it was so funny because her laughing cut off mid giggle when they gave her the anesthesia. That stuff works FAST! It took her a while to wake up, once she did she was groggy, but not in pain.
I was so relieved!
Here she is with the anesthesiologist, giggling her little head off.
Trying to wake up.
Cancer is never fun, but we are making so many friends while going through this and it was a little party at clinic today. Millie was there and we met darling Elena for the first time in person. She was getting her last treatment in Delayed Intensification. It was nice to chat with her mom, Brianna about what to expect this round.
We were so glad to have Grandma Di-Di there with us today. I needed my Mom's support because I was an emotional wreck! It was a LONG day of treatment, but Cam handled the 6+ hours with a positive and happy attitude.
She amazes me more and more each and every day.
We love you Grandma Di-Di! Thanks for being there! XOXOX