Camryn amazes me! We are starting to get the hang of these once a week hospital visits. She isn't old enough to understand time or conceive how long 2+ years of treatment is, but today I think she is finally grasping the idea that this is our new life. Today, as I was putting her down for a nap she said "Mommy do we have to go back to the hospital again tomorrow?" I told her no, but we have to go back in 6 days. She sighed and said "THEN will we be done going to the hospital?" - No we will have to go back many, many times to get that yucky leukemia out of your body. I explained it was going to be a long time until we'd be "all done" going to the hospital. I could see in her eyes that she understood. I could see she felt disappointment and sadness. It broke my heart. I gave her a hug, said it would be OK and told her how sorry I was. I will never forget the look in her eyes as she took both of my cheeks in her hands, looked me right in the eyes and said "Mommy, its going to be OK.. I promise Ill be good and brave, we will go together and it will be sorta, kinda, a little bit fun". I was so proud of her! How easy it would be to cry, kick, scream and throw a tantrum. I know thats what I'd want to do. I am learning so much from this little spirit, every day she inspires me to be stronger. Its a little ironic, as the parent Im supposed to be the strong one, but somehow, she's usually the one comforting me and telling me its going to be OK.
Cami did amazing at clinic today. We started the consolidation phase which will last for 28 days. She got Vincristine and didn't even flinch when they poked that needle into her port. She had a lumbar puncture (spinal tap) and even though she didn't want to go to see "the sleep doctors" (what 4 year old wants to take a "nap"?) She walked into that little OR giggling and teasing the Dr's. Seriously, she is one tough cookie. Before we left we stopped by the pharmacy to pick up her Mercaptopurine (chemo pills) which she will take tonight.
Weight: 19.1 kg (42 lbs.) She has lost almost 6 pounds since being off the steroids!
ANC: 2.1 (2100- this is gooooood!
Happy to be done!!!
Napping after a long day: