Everywhere I turn I see little bald heads lately. I couldn't love it more!
There is something so simple, raw, and innocent about bald heads. It is so sweet seeing Pat with the kids, I cant help but snap a few pictures.
We had so many people come to get their hair chopped at the cuts for Cami, that I didn't get a chance to cut my hair. I was fine with it, but Cam was bummed, so cute Natalie surprised me by making me an appointment to get it cut. My sister took Caden and Nat came to watch Cami. It was the first time I have left Cam with anyone other than my Mom or Pat. Boy was I nervous about it, but Cam had a blast and even went out to jump on the tramp for the first time in a month! Thanks Jess and Nat!
I love my new cut, now I just need styling lessons :)
--Thank you Lindsey for squeezing me in.. you are fabulous! XOXOXO
Cami's levels were WAY up this week and she is feeling much better now that those steroids are wearing off, so we decided to cram as much into the week as she was up to....
Cami was referred to Make a Wish!
They invited us to have a special wishing ceremony for her.
This was the sign when we walked in...
They made it really special for her.
They sent her a key in the mail about 3 weeks ago,
and she has been dreaming up wishes ever since.
She finally got to use the key to unlock the wizards tower.
Once inside the wizards tower, you submit your top three wishes into the wishing cone. This room was amazing. It had a water "wishing well", music, and interactive lights.
Before we even got to the wishing place, Cami had come up with 3 wishes.
1. "to ride on the magic carpet with Jasmine and Aladin".
2. "to be on a parade float". (They said this had never been wished for in Utah before.)
3. "to have a tea party with the princess's"
BUT when we got there, they sat us down and asked Cam specific questions to try and get her "prime" wish out of her.
In order to do this they ask all the "wish kids" the same 4 questions-
1. If you could be anything what would you be? -"a ballerina"
2. If you could have anything what would you have? -"a big box of jewelry"
3. If you could meet anyone who would you meet? -"Mickey Mouse and Pluto"
4. If you could go anywhere, where would you go? -"Disneyland"
I have no idea where these answers came from! Dont even ask about the jewelry I am baffled by that one, and as for Mickey and Pluto... she NEVER talks about them! I didnt even know she liked them that much. This girl has a mind of her own, I think she jumped the gun a little though because before leaving she made sure her wish granters knew about the 3 wishes she had been dreaming of all month. -They said they'd "see" what they could do ;)
We all got special tokens to make a wish in the fountain.
They treated Cam like royalty, she got gifts, balloons, ice cream, and cake.
Cami with her wish granters.
Volunteers who work on getting her specific wish granted.
What amazing people!
I am blown away by this wonderful organization. Cami has been SO excited for weeks and just holding on to that key has brought her comfort at times. Having something to look forward to is HUGE for these kids. Its hard when most days all you can see in your future is pain, medicine, Doctors, and laying in bed (with no germ ridden kids around)! Somehow this organization has found a way to give these kids hope, and a BRIGHT future. It was a very emotional night for me, because I know Cami, along with these other kids deserve something extra special and that is exactly what she's going to get! Make a wish is THE BEST!!!
Wednesday was Pats work Lagoon day. I was a nervous wreck, letting Cami go to such a germ infested place, but the Doctors assured me her levels were WAY high enough (2200) and that it is important for her to do fun (normal-kid) things while her levels are high. (They expect them to drop significantly next week and stay that way for about a month.) So we wanted to get her out while she still can!
The kids had a blast, and once I got over my germ phobia
(and all the stares, points and comments Cam was getting) I had a blast too.
It was nice to do something totally un-illness related.
love these two little baldies...
Caden cried after EVERY ride. He didnt want to get off.
It was both annoying and so very cute :)
Cam got her head painted..
I had to include Cami's picutre of our family riding the train- she had SO much fun!
Cam gets tired very easily, but this works out nicely for Pat...
Its been a good week. I feel refreshed after having a few hours to myself and getting a new look. It was GREAT for all of us to have a few normal days being out on the town. I hope next week will be a good one, but if not.. I am READY!